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Effectiveness of a Structured Method of Counseling for Patients Planned for Blood and Marrow Transplantation: A Pilot Study

Sharumathy Velmurugan, Janarthanan B., Kalpana Rajesh, Malliha Ram, Sivaranjini K., Prasanth Ganesan, Biswajit Dubashi, Smita Kayal

Abstract


Purpose: Blood and marrow transplant (BMT), a lifesaving procedure for many hematological diseases, is a multi-step process with various complications and considerable risk of mortality. Hence understanding of prognosis and likelihood of benefit with BMT is essential component of informed decision making. This pilot study focuses on assessing the knowledge and perception about BMT before and after a structured method of counseling for patients planned for it. Methods: Study was conducted with patients registered in the transplant clinic of a tertiary care cancer center from June to August 2018. Before initiation of counselling a predesigned questionnaire was administered to recruited patients to record their baseline status of knowledge and perceptions about BMT. A fourstep structured method of counselling over a period of 4–6 weeks was followed for advising patients about BMT. Following each step, status of knowledge and perception of the participants was re assessed and the change was compared to baseline. Results: Total of 25 patients or caregiver were recruited, median age was 30 years (range, 5–58). 13 patients (52%) were planned for allogeneic transplant and 12 (48%) for autologous. At baseline, 100% of participants had inadequate knowledge which improved to average knowledge for 60% at first step and good score for 55% at second step. Regarding the level of perception 4%, 84% and 100% had favorable perception at baseline, after first step and second step respectively. Conclusion: Structured serial steps of counseling improve the level of knowledge and perception of patient who are planned for BMT.

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